Resources
Here at VIVA Pediatrics we understand the worries and difficulties that families of children with disabilities have to go through. In an effort to help our families, we constantly strive to provide them with relevant and helpful resources and information. For current events and opportunities, also visit us on Facebook
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Professional
Resource Title | Contact Number | Website Link |
---|---|---|
211 Texas 2-1-1 | 211 | www.211texas.org |
American Nurses Association | (800) 274-4262 | www.nursingworld.org |
Disability Rights Texas | (800) 252-9108 | www.disabilityrightstx.org |
Help for Texans | (check local listing) | www.dads.state.tx.us/services/index.cfm |
National Association for Home Care & Hospice (NACH) | (202) 547-7424 | www.nahc.org |
National Registry of Rehabilitation Technology Suppliers (NRRTS) | (800) 976-7789 | www.nrrts.org |
National Respite Locator Service | (800) 773-5433 | www.archrespite.org/respitelocator |
Poison Control | (800) 222-1222 | www.poison.org |
Texas Association of Home Care and Hospice (TAHCH) | (512) 338-9293 | www.tahch.org |
Disorders & Diseases
Resource Title | Contact Number | Website Link |
---|---|---|
Autoimmune Disease Guide: Everything You Need to Know About Autoimmune | (888) 466-8635 | http://blog.delimmune.com/2014/07/autoimmune-disease-guide/ |
American Chronic Pain Association | (800) 533-3231 | www.theacpa.org |
American Cleft Palate Association | (800) 242-5338 | www.cleftline.org |
American Diabetes Association | (800) 342-2383 | www.diabetes.org |
American Foundation of Urologic Disease | (866) 746-4282 | www.urologyhealth.org |
American Pain Foundation | (888) 615-7246 | www.painfoundation.org |
Arthritis Foundation | (800) 568-4045 | www.arthritis.org |
Autoimmune Disease in Women | (800) 598-4668 | http://www.aarda.org/autoimmune-information/autoimmune-disease-in-women |
Autoimmune Diseases Fact Sheet | (800) 994-9662 | http://www.womenshealth.gov/publications/our-publications/fact-sheet/autoimmune-diseases.html |
Autoimmune Disorders | http://www.nlm.nih.gov/medlineplus/ency/article/000816.htm | |
Birth Injury Guide | (877) 415-6603 | www.BirthInjuryGuide.org |
Cystic Fibrosis Foundation | (800) 344-4863 | www.cff.org |
Dandy Walker Alliance | (877) 326-3992 | www.dandy-walker.org |
Down Syndrome Partnership of Tarrant County | (817) 390-2970 | www.dsptc.org/ |
Find AutoImmune Disease Specialists | (855) 962-3621 | http://www.zocdoc.com/morespecialties |
International Down Syndrome Coalition | (901) 413-2047 | www.theidsc.org |
Muscular Dystrophy Association | (800) 344-4863 | www.mda.org |
National Easter Seal Society | (800) 221-6827 | www.easterseals.com |
National Kidney and Urologic Diseases Information Clearinghouse | (800) 891-5390 | www.kidney.niddk.nih.gov |
National Kidney Foundation | (800) 622-9010 | www.kidney.org |
National Organization for Rare Disorders (NORD) | (800) 999-6673 | www.rarediseases.org |
Osteoarthritis and the Medicare Advantage Special Needs Plan | (888) 312-5447 | http://www.planprescriber.com/medicare-advantage/special-needs-plan/ |
Paralysis Resource Center | (800) 539-7309 | www.christopherreeve.org |
United Cerebral Palsy Association | (800) 872) 5827 | www.ucp.org |
Children
Resource Title | Contact Number | Website Link |
---|---|---|
A Hand to Hold | (855) 424-6428 Ext.3 | www.handtohold.org |
Childhelp National Child Abuse Hotline | (800) 422-4453 | http://www.childhelp.org |
Connections -Special Needs Kids Directory | (888) 596-6366 | www.specialneedskidsdirectory.com |
Family Voices | (800) 835-5669 | www.familyvoices.org |
La Leche League | (800) 525-3243 | www.llli.org |
Make-A-Wish Foundation of America | (800) 722-9474 | www.wish.org |
March of Dimes Birth Defects Foundation | (914) 997-4488 | www.marchofdimes.com |
Medical Transportation Program | (877) 633-8747 | www.texashealthsteps.com |
Medically Dependent Children’s Program (MDCP) | (512) 438-2080 | www.dads.state.tx.us/providers/mdcp |
Money Follows the Person /MDCP Interest List | (877) 438-5658 | www.dads.state.tx.us/providers/MDCP/index.cfm |
Texas Health Steps | (877) 847-8377 | www.dshs.state.tx.us/thsteps/default.shtm |
Texas Parent to Parent | (866) 896-6001 | www.txp2p.org |
Traditional Medicaid and Healthcare Partnership | (800) 925-9126 | www.tmhp.com |
Agencies & Institutions
Resource Title | Contact Number | Website Link |
---|---|---|
American Association of Kidney Patients | (800) 749-2257 | www.aakp.org |
American Council of the Blind | (800) 424-8666 | www.acb.org |
American Foundation for the Blind | (800) 232-5463 | www.afb.org |
American Heart Association | (800) 242-8721 | www.americanheart.org |
American Lung Association | (800) 586-4872 | www.lungusa.org |
American Red Cross | (202) 737-8300 | www.redcross.org |
American Speech-Language-Hearing Association | (800) 638-8255 | www.asha.org |
Association for Retarded Citizens (ARC of the United States) | (301) 565-3842 | www.thearc.org |
Birth Injury Justice Center | (855) 215-1724 | www.childbirthinjuries.com |
CDC (Centers for Disease Control) | (800) 458-5231 | www.cdc.gov |
FDA (Food and Drug Administration) | (800) 638-6725 | www.fda.gov |
National Association for the Deaf | (301) 587-1788 | www.nad.org |
National Institute of Health | (301) 496-4000 | www.nih.gov |
Shriners | (813) 281-0330 | www.shrinershq.org |
United Way | (check local listing) | www.liveunited.org |
Brain & Spine
Resource Title | Contact Number | Website Link |
---|---|---|
American Brain Tumor Association | (800) 886-2282 | www.abta.org |
Brain Injury Resource Center | (206) 621-8558 | www.headinjury.com |
National Brain Tumor Foundation | (800) 934-2873 | www.braintumor.org |
National Multiple Sclerosis Society | (800) 344-4867 | www.nationalmssociety.org |
National Spinal Cord Injury Association | (800) 886-2282 | www.spinalcord.org |
Spina Bifida Association of America (SBAA) | 800) 621-3141 | www.spinabifidaassociation.org |
Cancer
Resource Title | Contact Number | Website Link |
---|---|---|
American Cancer Society | (800) 422-6237 | www.cancer.org |
Leukemia & Lymphoma Society | (800) 955-4572 | www.leukemia-lymphoma.org |
National Cancer Institute | (800) 422-6237 | www.healthcentral.com |
Wellness
Resource Title | Contact Number | Website Link |
---|---|---|
Medic Alert Foundation International | (888) 633-4298 | www.medicalert.org |
National Council on Patient Information and Education | (301) 656-8565 | www.talkaboutrx.org |
Special Needs Camps
Resource Title | Contact Number | Website Link |
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Very Special Camps | www.veryspecialcamps.com |
“Our VIVA nurse has become a part of our family. He takes his time with our daughter, making sure she is happy and smiling and is always attentive to her care. She recently underwent a surgery and our nurse researched her surgery as well as what her aftercare would be! He has been absolutely amazing. We are blessed to have him as part of our family. VIVA Rocks!”
“I am truly blessed to have come across VIVA Pediatrics. I just love how the nursing and therapist staff cares for our family. I don’t look at VIVA as a company, but as family. Shea and Emily are amazing therapists. They have our daughter completing tasks doctors said she would never be capable of.”
“From the sorrow of the possibility of losing our youngest child to the joy of being able to come home and care for our child, we have the best nursing team anyone can have.”
“Our family is so grateful for the nursing care VIVA provides. The expertise and compassion of the nurses blesses our family in an enormous way.”
“From day one, I’ve been thankful for my job at VIVA Pediatrics. The hiring process was easy and the schedulers have always been a pleasure to work with. I love my schedule and that my time spent working is an investment in not only the life of a child, but the health of a family. VIVA enables higher levels of patient advocacy by having a regular relationship with the patient to gain a healthy, fulfilled life.”
“As a new young mother, I truly appreciate the help and support of our VIVA Pediatrics nurses. It can be very stressful at times, but my nurses are great and love my son. I am able to go to work and know that my son is happy and in good hands.”
“Thank you for providing outstanding service to our family! Knowing that our daughter is well cared for gives us peace of mind.”
“Even though our daughter faced many challenges when she was born, VIVA was able to help us raise her to be a healthy girl. They just offer so much to the families. Thank you VIVA for doing an awesome job!”
“Maria was always my biggest dream, before she was born, I had to wait 3 long years so that God would send me this little ray of light to my life. When she arrived, my life changed. She filled all of my being. When the doctor gave me the diagnostic, the world crumbled upon me, but I shook my sadness away and filled myself with courage. It was never hard for me to take care of her, but I felt tired. That’s when the doctor referred my daughter to VIVA Pediatrics and they were for my daughter, a hope and a magnificent quality of life. I now have a nurse I consider part of my family. It’s because of my nurses, the magnificent care, respect and quick response that VIVA Pediatrics provides that I wouldn’t trust any other company with the care of my little one.”
“My peers and I have swapped horror stories of first jobs with inadequate training, orientation promises not kept, unsafe nurse to patient ratios, and situations of very little patient care and very much paperwork. Now, I am proud to tell my peers that Viva Pediatrics requires testing and check-offs, provides trach and vent training, ample training and orientation on new cases, and no pressure to take cases that put nurses or patients at risk. Viva is allowing me a great opportunity to transition from teaching children with special needs to nursing children with special needs, and I am extremely grateful! I appreciate the confidence they have shown in me.”