Resources

Here at VIVA Pediatrics we understand the worries and difficulties that families of children with disabilities have to go through.  In an effort to help our families, we constantly strive to provide them with relevant and helpful resources and information. For current events and opportunities, also visit us on Facebook

Search Resources:

Professional

Resource Title Contact Number Website Link
211 Texas 2-1-1 211 www.211texas.org
American Nurses Association (800) 274-4262 www.nursingworld.org
Disability Rights Texas (800) 252-9108 www.disabilityrightstx.org
Help for Texans (check local listing) www.dads.state.tx.us/services/index.cfm
National Association for Home Care & Hospice (NACH) (202) 547-7424 www.nahc.org
National Registry of Rehabilitation Technology Suppliers (NRRTS) (800) 976-7789 www.nrrts.org
National Respite Locator Service (800) 773-5433 www.archrespite.org/respitelocator
Poison Control (800) 222-1222 www.poison.org
Texas Association of Home Care and Hospice (TAHCH) (512) 338-9293 www.tahch.org

Disorders & Diseases

Resource Title Contact Number Website Link
Autoimmune Disease Guide: Everything You Need to Know About Autoimmune (888) 466-8635 http://blog.delimmune.com/2014/07/autoimmune-disease-guide/
American Chronic Pain Association (800) 533-3231 www.theacpa.org
American Cleft Palate Association (800) 242-5338 www.cleftline.org
American Diabetes Association (800) 342-2383 www.diabetes.org
American Foundation of Urologic Disease (866) 746-4282 www.urologyhealth.org
American Pain Foundation (888) 615-7246 www.painfoundation.org
Arthritis Foundation (800) 568-4045 www.arthritis.org
Autoimmune Disease in Women (800) 598-4668 http://www.aarda.org/autoimmune-information/autoimmune-disease-in-women
Autoimmune Diseases Fact Sheet (800) 994-9662 http://www.womenshealth.gov/publications/our-publications/fact-sheet/autoimmune-diseases.html
Autoimmune Disorders http://www.nlm.nih.gov/medlineplus/ency/article/000816.htm
Birth Injury Guide (877) 415-6603 www.BirthInjuryGuide.org
Cystic Fibrosis Foundation (800) 344-4863 www.cff.org
Dandy Walker Alliance (877) 326-3992 www.dandy-walker.org
Down Syndrome Partnership of Tarrant County (817) 390-2970 www.dsptc.org/
Find AutoImmune Disease Specialists (855) 962-3621 http://www.zocdoc.com/morespecialties
International Down Syndrome Coalition (901) 413-2047 www.theidsc.org
Muscular Dystrophy Association (800) 344-4863 www.mda.org
National Easter Seal Society (800) 221-6827 www.easterseals.com
National Kidney and Urologic Diseases Information Clearinghouse (800) 891-5390 www.kidney.niddk.nih.gov
National Kidney Foundation (800) 622-9010 www.kidney.org
National Organization for Rare Disorders (NORD) (800) 999-6673 www.rarediseases.org
Osteoarthritis and the Medicare Advantage Special Needs Plan (888) 312-5447 http://www.planprescriber.com/medicare-advantage/special-needs-plan/
Paralysis Resource Center (800) 539-7309 www.christopherreeve.org
United Cerebral Palsy Association (800) 872) 5827 www.ucp.org

Children

Resource Title Contact Number Website Link
A Hand to Hold (855) 424-6428 Ext.3 www.handtohold.org
Childhelp National Child Abuse Hotline (800) 422-4453 http://www.childhelp.org
Connections -Special Needs Kids Directory (888) 596-6366 www.specialneedskidsdirectory.com
Family Voices (800) 835-5669 www.familyvoices.org
La Leche League (800) 525-3243 www.llli.org
Make-A-Wish Foundation of America (800) 722-9474 www.wish.org
March of Dimes Birth Defects Foundation (914) 997-4488 www.marchofdimes.com
Medical Transportation Program (877) 633-8747 www.texashealthsteps.com
Medically Dependent Children’s Program (MDCP) (512) 438-2080 www.dads.state.tx.us/providers/mdcp
Money Follows the Person /MDCP Interest List (877) 438-5658 www.dads.state.tx.us/providers/MDCP/index.cfm
Texas Health Steps (877) 847-8377 www.dshs.state.tx.us/thsteps/default.shtm
Texas Parent to Parent (866) 896-6001 www.txp2p.org
Traditional Medicaid and Healthcare Partnership (800) 925-9126 www.tmhp.com

Agencies & Institutions

Resource Title Contact Number Website Link
American Association of Kidney Patients (800) 749-2257 www.aakp.org
American Council of the Blind (800) 424-8666 www.acb.org
American Foundation for the Blind (800) 232-5463 www.afb.org
American Heart Association (800) 242-8721 www.americanheart.org
American Lung Association (800) 586-4872 www.lungusa.org
American Red Cross (202) 737-8300 www.redcross.org
American Speech-Language-Hearing Association (800) 638-8255 www.asha.org
Association for Retarded Citizens (ARC of the United States) (301) 565-3842 www.thearc.org
Birth Injury Justice Center (855) 215-1724 www.childbirthinjuries.com
CDC (Centers for Disease Control) (800) 458-5231 www.cdc.gov
FDA (Food and Drug Administration) (800) 638-6725 www.fda.gov
National Association for the Deaf (301) 587-1788 www.nad.org
National Institute of Health (301) 496-4000 www.nih.gov
Shriners (813) 281-0330 www.shrinershq.org
United Way (check local listing) www.liveunited.org

Brain & Spine

Resource Title Contact Number Website Link
American Brain Tumor Association (800) 886-2282 www.abta.org
Brain Injury Resource Center (206) 621-8558 www.headinjury.com
National Brain Tumor Foundation (800) 934-2873 www.braintumor.org
National Multiple Sclerosis Society (800) 344-4867 www.nationalmssociety.org
National Spinal Cord Injury Association (800) 886-2282 www.spinalcord.org
Spina Bifida Association of America (SBAA) 800) 621-3141 www.spinabifidaassociation.org

Cancer

Resource Title Contact Number Website Link
American Cancer Society (800) 422-6237 www.cancer.org
Leukemia & Lymphoma Society (800) 955-4572 www.leukemia-lymphoma.org
National Cancer Institute (800) 422-6237 www.healthcentral.com

Wellness

Resource Title Contact Number Website Link
Medic Alert Foundation International (888) 633-4298 www.medicalert.org
National Council on Patient Information and Education (301) 656-8565 www.talkaboutrx.org

Special Needs Camps

Resource Title Contact Number Website Link
Very Special Camps www.veryspecialcamps.com
“Our VIVA nurse has become a part of our family. He takes his time with our daughter, making sure she is happy and smiling and is always attentive to her care. She recently underwent a surgery and our nurse researched her surgery as well as what her aftercare would be! He has been absolutely amazing. We are blessed to have him as part of our family. VIVA Rocks!”
Isabella's mom
“I am truly blessed to have come across VIVA Pediatrics. I just love how the nursing and therapist staff cares for our family. I don’t look at VIVA as a company, but as family. Shea and Emily are amazing therapists. They have our daughter completing tasks doctors said she would never be capable of.”
Joshlynn
“From the sorrow of the possibility of losing our youngest child to the joy of being able to come home and care for our child, we have the best nursing team anyone can have.”
Christie and Steve
“Our family is so grateful for the nursing care VIVA provides. The expertise and compassion of the nurses blesses our family in an enormous way.”
Meredith and Jake
“From day one, I’ve been thankful for my job at VIVA Pediatrics. The hiring process was easy and the schedulers have always been a pleasure to work with. I love my schedule and that my time spent working is an investment in not only the life of a child, but the health of a family. VIVA enables higher levels of patient advocacy by having a regular relationship with the patient to gain a healthy, fulfilled life.”
Sarah
“As a new young mother, I truly appreciate the help and support of our VIVA Pediatrics nurses. It can be very stressful at times, but my nurses are great and love my son. I am able to go to work and know that my son is happy and in good hands.”
Sharon
“Thank you for providing outstanding service to our family! Knowing that our daughter is well cared for gives us peace of mind.”
Cindy and John
“Even though our daughter faced many challenges when she was born, VIVA was able to help us raise her to be a healthy girl. They just offer so much to the families. Thank you VIVA for doing an awesome job!”
Emilia and Michael
“Maria was always my biggest dream, before she was born, I had to wait 3 long years so that God would send me this little ray of light to my life. When she arrived, my life changed. She filled all of my being. When the doctor gave me the diagnostic, the world crumbled upon me, but I shook my sadness away and filled myself with courage. It was never hard for me to take care of her, but I felt tired. That’s when the doctor referred my daughter to VIVA Pediatrics and they were for my daughter, a hope and a magnificent quality of life. I now have a nurse I consider part of my family. It’s because of my nurses, the magnificent care, respect and quick response that VIVA Pediatrics provides that I wouldn’t trust any other company with the care of my little one.”
Beatriz
“My peers and I have swapped horror stories of first jobs with inadequate training, orientation promises not kept, unsafe nurse to patient ratios, and situations of very little patient care and very much paperwork. Now, I am proud to tell my peers that Viva Pediatrics requires testing and check-offs, provides trach and vent training, ample training and orientation on new cases, and no pressure to take cases that put nurses or patients at risk. Viva is allowing me a great opportunity to transition from teaching children with special needs to nursing children with special needs, and I am extremely grateful! I appreciate the confidence they have shown in me.”
Melanie